I’m a parent of a high school student with high functioning autism and epilepsy. As schools all around the country announce shutdowns and move towards online education, kids like mine are going to suffer the most.
The move to online education, which has been largely driven by the imperative to maintain the 180-day minimum without taxing already stretched budgets or running afoul of teachers’ contracts, will be difficult to manage. To date, nearly 42 million students. have already been impacted. Will teachers and administrators manage to create an entire system of online K-12 education from scratch in a handful of days? Do teachers have the technological skills, equipment, or experience to implement those plans? Do families have enough computers for themselves and all their children? The questions are endless.
We’re in the midst of a huge educational experiment and really have no way of knowing how it will work out. There are even more problems and questions around online special education.
With plumed caps and braided epaulets for miles, marching bands are a staple of the high school football game. Students stride purposefully around the field with piccolos and tubas, and synchronize their steps to Billy Joel medleys, homages to Mary Poppins and even a snappy march or two from John Philip Sousa. Girls in flared skirts and knee-high boots triumphantly wave flags or twirl wooden rifles.
In some ways, marching bands are anachronistic today. The frozen smiles and stiff-legged choreography of these bands harken back to a 1940s Esther Williams technicolor movie. The twirling rifles feel vaguely sinister in this post-Sandy Hook era. Yet they hold a certain magic, too — a place of innocence and sincerity not found elsewhere in the dystopian world of the modern American high school. They hold a different kind of magic for the kids who participate in this activity.
Along with the A/V club and the stage crew, marching bands have long been safe places for kids like the socially awkward girl, Michelle, from the 1999 cult flick American Pie, who annoys everyone with tales about band camp. The typical participant is not a super star on the football field or in student government.
Marching bands also draw in kids with various learning differences, including those with high-functioning autism. For these students, marching band is an activity in which they can participate with peers. With its unique combination of exercise, dance, music and rigor, it also may be a place where they heal.
The aging school buildings of Arizona’s Glendale Elementary School District were no match for the late summer monsoons of 2016. With foundations made brittle after years of prolonged water damage, flooding seeped in. A structural engineer feared that walls would give way.
School leaders scrambled to find new spaces for nearly 1,500 students until outside contractors could remediate waterlogged walls and floors and reinforce foundations in two buildings. Some students were shuttled to another school in the district; others were sent to a neighboring town.
Superintendent Cindy Segotta-Jones didn’t want to make the students relocate. But with aging buildings desperately needing repair after years of underfunding, she had no choice. “You can’t tell me that it doesn’t impact their learning when they’re in a different environment,” she said. “These disruptions are not fair to children.”
America’s schools, many built in the late 1960s and early 1970s, are due for a major overhaul after decades of inadequate funding made worse by the 2008 recession. These old buildings are only getting older — in Glendale, where some schools date to the 1940s, drainage problems make them vulnerable during the rainy season and aging air conditioners frequently conk out as temperatures soar to 115 degrees.
Starting when he was in middle school, I could have taken a stronger role in overseeing his schoolwork by editing his papers, re-teaching certain subjects and hiring tutors in others. I could have checked his online gradebooks daily. I could have supervised homework and nudged him to schmooze with teachers. In high school, we could have hired one-on-one tutors to prepare him for standardized tests. I could have pushed him to take on leadership positions in clubs he didn’t care about. I could have written his essay and filled out the Common Application for him.
With our backgrounds in higher education, my husband and I have more relevant skills than many other families in our community. We likely could have micromanaged our kid into Harvard. But we didn’t. Between our son’s stubborn resistance to our help, and our own ethics and laziness, we did very little to turn our kid into a tidy package for colleges. Instead, I taught my son how to be a good education consumer.
In this article, I look at online groups that special ed parents form to help each with the crazy, complicated world of special education.
When Stasi Webber decided it was time to uproot her family from their Michigan home to find a better school for her 11-year-old son with autism, she turned to the internet for answers.
The public schools in her state don’t provide the specialized behavioral and life skills training, known as ABA therapy, that her son needs; he skips school every Tuesday and Thursday to receive these essential services. But recently, Webber learned from parents on social media that her son could get both academics and ABA training in schools in New Jersey, where she grew up.
With a tentative plan of returning to her childhood home in Mahwah, she found three or four local social media sites run by special education parents and asked about ABA services at the local district, its willingness to send students to specialized schools and comparisons with nearby towns. She put her house on the market.
“I knew I had to reach out to the internet, because moms are willing to help other moms,” Webber said. “You find out the most information that way.”
Sometimes a community college is right for students, for financial or academic or career reasons, but they aren’t getting enough info about community colleges in high school. Here’s my article on the topic:
Despite a stellar high school record with great grades, Advanced Placement classes and leadership positions on the debate team and in marching band, Jennifer Hernandez was completely unprepared during her senior year to choose a college or even comprehend the jargon that surrounds the application process.
“I did not know where to start,” she said. As a first-generation student living in the Chicago suburb of Rolling Meadows, Illinois, she didn’t have family who could decipher the terminology or take her to visit college campuses. Nor did she get that help from an adviser. Like many high schools around the country, hers did not have enough guidance counselors, she said. And the counselors the school did have were too busy to support students who needed extra help, like her.
With no one to guide her, Hernandez applied to a number of four-year colleges — some local, some chosen at random — not realizing until she received her acceptance letters that she could not afford them. She then scrambled, on her own, to apply to a community college later in the spring of her senior year. Her school counselors, she said, again didn’t help with her application, or provide much-needed information about how she could eventually transfer to a four-year school. With the stigma associated with community college, Hernandez said, she felt demoralized. “It was pretty rough,” she said.
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Midway through American Airlines Flight 101 from Heathrow to JFK, shortly after our microwaved meatball dinners were tossed out like frisbees, the flight attendant asked my son Ian if he wanted another beverage. He intently played his Tetris game on the backseat video console without replying or glancing her way.
Missing most of that exchange, I looked over in time to hear the flight attendant loudly exclaim, “Well, how RUDE is that?” She glared at me.
I recited the textbook response I give whenever Ian does something that inadvertently annoys strangers: “My son has autism, so we try to be understanding.”